Majority of people with hemophilia in India remain undiagnosed

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Lack of awareness about the condition is a big impediment

New Delhi, 21st April 2018: According to Hemophilia Federation India, there are about 19,858 people with Hemophilia in India. Of these, about 80% have Hemophilia A, 12% have Hemophilia B, and about 3% suffer from von Willebrand disease (VWD).Most people with this condition are undiagnosed in the country and lack access to care. There is a need to raise awareness about Hemophilia among people.

Hemophilia is an inherited disorder of blood clotting. There are substances called clotting factors in the blood, which mix with blood cells to make clots causing the bleeding to stop. People with hemophilia are deficient in these clotting factors.

Speaking about this, Padma Shri Awardee Dr K K Aggarwal, President Heart Care Foundation of India (HCFI),said, “Females are carriers of hemophilia. It is not a life-threatening disorder unless the bleeding extends into a vital organ. However, it can be severely debilitating and there is no known cure for this disorder. About a third of new cases are caused due to a new mutation of the gene in the mother or the child. In cases where the mother is a carrier and the father does not have the disorder, there is a 50% chance of the male child having hemophilia and 50% chance of the female child being a carrier.One should see a doctor in case the following symptoms show up: a severe headache, repeated vomiting, neck pain, blurred or doubled vision, extreme sleepiness, and continuous bleeding from an injury.”

Hemophilia is of three types: A, B, and C and the difference between the three lies in the deficiency of a specific factor.

Adding further, Dr Aggarwal, who is also the Group Editor of IJCP, said, “The primary treatment for hemophilia is called factor replacement therapy. In this, the deficient factor is replaced by concentrates of clotting factor VIII (for hemophilia A) or clotting factor IX (for hemophilia B). These can be collected and purified from blood plasma or produced artificially in a laboratory (recombinant). They are given to the patient as an injection through a vein (intravenous) directly into the blood.”

Some tips from HCFI


Hemophilia can be managed by following certain lifestyle tips.

  • Adequate physical activity can help maintain body weight and improve muscle and bone strength. However, avoid physical activity that can cause injury and resultant bleeding.
  • Avoid blood-thinning medication such as warfarin and heparin. It is also better to avoid over-the-counter medicines like aspirin and ibuprofen.
  • Clean your teeth and gums thoroughly. Get tips from your dentist on how to do this without making the gums bleed.
  • Get tested regularly for blood infections and get your doctor’s advice on hepatitis A and B vaccinations.

A heartfelt tribute to my friend and colleague

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Dr KK Aggarwal

Recipient of Padma Shri

Yesterday, Dr Rajiv Dhir, my friend and colleague of many years, suddenly decided to hide himself from us forever and hereafter to stay on with us, in our memory and soul.

He was always an active member of IMA and DMA and was working with me for the last several years.

A General Practitioner, Writer, Editor and Leader, he always had a smile and a cheerful word for everybody. It remains upon us to keep his memory alive.

This brings to my mind the question of life after death. Life is nothing but a connection between wave and particle. Death occurs when they disconnect with each other. The particle then merges with the five elements and the wave part stays alive merging with the virtual part of the waves.

As per Bhagawad Gita, whatever you think becomes your habit; whatever your habits, will be your thoughts and whatever your thoughts are at the time of death, will decide the next journey for those who believe in it.

The purpose of our life is to think positive, do positive at every step in life.

Live everyday of your life to the fullest…the most predictable thing about life is its unpredictability.

Dr KK Aggarwal

Padma Shri AwardeeVice President CMAAOGroup Editor-in-Chief IJCP Publications

President Heart Care Foundation of India

Immediate Past National President IMA